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in his way

Posted by rae on Jun 30, 2009 in Mom's Corner

The energizer bunny…where does he live? Maybe here.  Mike does not rest when he is awake.  If we are home, he likes the background noise of the TV but he really doesn’t watch much.  The morning news will catch his attention, ESPN for a quick sports update,  he likes to listen to the championship poker games every now and then lifting his eyes for a glimpse at the poker table. In the evening there are a couple of shows he likes but for the most part, if we are home his brain is not resting.  He probably owns every DS brain challenging game there is and the DS does not have a chance to gather dust (or in our house, disgusting dog hair from our “wonder how he still has any hair” Mastiff).  If Michael is not playing DS, or researching something on the Internet, or participating in a rehab program or something related to rehab, he is reading the blog.  He is constantly focused without the ability to maintain focus.  A conundrum.

co·nun·drum something confusing: something that is puzzling or confusing

Michael will work night and day retraining the areas of his brain that need to find new pathways; making the connections stronger with each challenge.  He is focused. He can maintain focus without interruption for hours and would if I didn’t get in his way.  Ask him…he’ll tell you just how much I get in his way.  The “General”  is committed.  He has mastered the art of being alone in a room full of people and I can probably be pretty good at that myself. Maybe you’re good at it as well.  The difference is, Michael is recovering from an injury to his head that changed the way his brain works.  His brain is still in training. It is still healing, still getting stronger, damaged parts that used to control a thought process still need to find a new way to connect the right lobe to the left lobe, the back to the front, that beautiful wonderous healing brain is still a work in progress.   So the part that let’s him focus for hours alone with his electronics is good BUT….

brain3sI read this recently and thought it was so relevant to what we (Mike and the rest of us) are experiencing.  We are born with the amount of brain cells (neurons) that we will need for a lifetime but the neurons aren’t connected. As we  interact with an infant or toddler, connections are formed. Positive interactions with nurturing parents or caregivers – like the attention children receive when they are read to. Even friends make a difference (yes, your circle of friends is a vital part of your working brain) -interaction profoundly stimulates old and young brains. This stimulation causes new connections to form pathways (learning pathways) and strengthens existing ones.   As we age we shed the neurons we don’t use so the more stimulation and experiences you have, the more connections your brain will have formed (synapses) and the less it will shed.  Connection. Being connected helps our brains stay connected. Pretty cool, huh?

You know we’re always keeping hope alive down here on the Roseberry Farm and my hope today is that my brain isn’t shedding as much as our dog is.  :)   Jokes aside, for the brain to keep making those connections it must rest.  It must rest during periods of awakeness and also rest during periods of sleep. Without enough rest, the brain taps out of it’s stash of energy just like our bodies do.  Man, am I good at making a short point long!  Sorry. 

A couple of things to finish this update.  Michael has lost the ability to rest his brain during  periods of awakeness and I know that without it, his recovery will suffer. I care enough to get in his way.  There is a processing overload with some brain injuries that makes it more difficult to keep up with conversations, retain information, distracting noise,  too many people talking, etc. Information is easier to process when you control the speed of what and how it comes in.   All that DS and iPhone focus could be viewed as withdrawing, it might even seem rude at times but it is more than likely a way to control what and how information comes in.  I care enough to get in his way.   If Michael is going to re-enter the world as an independent player (and yes, even a playa) one day, he must learn to be in the moment. He must re-learn the talents of his person – to analyze and pay attention to the details and nuances of conversation. He must be able to make decisions, pay attention, focus, care about what is outside of those eight inches away from his face.  Electronics - not where real people live. I care enough to get in his way.

God bless all of you that care enough to get in his way.  For not excepting anything less from Michael than what he would want you to.  Jim says “figure it out”.  Nate. God bless Nate. He pushes Mike harder than anyone else to keep fighting his way out.  He pushes him emotionally telling Mike that when he stays nose down on his phone the whole time they’re together it makes him feel like Mike doesn’t care. He pushes him mentally – yesterday they took a trip to the mall using public transportation helping Mike take those first steps toward mobile independence. He pushes him physically – today they swam 1300 meters.  The swim today included a 200 meter drill in the stroke that someone said within the first six months out of the hospital after seeing him swim  a stroke that  he used to swim with such power and  fluidity “don’t try to swim butterfly anymore. You can’t do it now,  it takes too much coordination, just do freestyle”.  Yeah, don’t tell them that Mike won’t be able to do something because Nate will push his brother to do everything you said he couldn’t.  

I only talked about Nate and briefly Jim but there are others that show Mike every day that they care enough to get in his way.  Karl – “Mike you were supposed to call me today…don’t give me excuses!”   A few months ago, the band of brothers played their best poker hands with Mike cutting him no slack (he came in second by the way).  I think they would want the same.

I look each day in the face but fast forward to “what if” when things get tough…”what if” something should happen to me? and what if  Mike isn’t ready? There is nothing like that “what if” to get me right back where I need to be.  It is not always easy, is it Mike?  We butt heads, we are both determined and many times we are determined not to back down.  But just as I knew it then, and I know it now.  We can do this. You can do this. I gotcha.

LIVESTRONG Michael

xxoo

 
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I’m coming clean

Posted by mike on Jun 28, 2009 in Mike's Posts

Alright, the time has come (again) and I feel it necessary for me to be healthy both mentally and physically for me to get a few things off my chest…..ala,”hello world”…..number one on my list is I LOVE AMANDA KIBBEN, sorry Chris but I think I do love you also just for just understanding. Amanda I am sorry to you because I feel as though I am soo needy now that I must be in constant communication with you. Not necessarily constant contact but maybe just daily would be nice.
Number two is Erin Gay, I posted on the blog, world-wide-web, a while back, something, an attack and it was unjust, I am sorry. I wrote you an email apologizing (weak and pathetic).
(Now you, more than likely do not care but it has been weighing on my conscience, thats right people IRON mike does have feelings, and I needed to get it off of my chest…so done and now back-to-business)
I read old comments on the blog almost daily because it helps give me a sense of the accomplishments I had made leading up to this the most important battle of my life and its not over, ha, far from over, its never over. I will forever be a traumatic brain injury survivor until maybe another fateful day when maybe I’m assassinated for being too awesome?
Until then…………

 
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june 18 1982

Posted by rae on Jun 18, 2009 in Mom's Corner

 Happy 27th Birthday Michael!

img_0368

 

 

 

 

Dance like there’s no one watching…it’s your day! 

dancing-fool

 

 

 

 

More than words…we are so glad you’re here!

xxoo

 

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Brohyme

Posted by nate on Jun 4, 2009 in By Nate

Pinwheel

I realize that I have barely opened the window to the experience we have been through the past couple years. I have been unsure of how I feel, and haven’t  thought that it mattered if I speak or not. But I will do it for Mike.

 I miss my brother. Not like 25 year old Mike, but like I havent seen him in a couple days, and cant wait to see him!  Not to say that everyday is paradise, because that would be a lie.
And not to say that I dont miss those nights before the accident. Holding each other up. Both sunk down in a drunken somethin, and me thinking that Mikes going to puke, but he never did. and I always did.  
But it has been really moving to go through this recovery( which is not temporary at all ). Its like everyday, every activity is another tattoo. Everything is so apparant. You reeping what you sow. 
 Im still not sure of my purpose, and it shifts quite a bit as Mike changes.  As he faces new challenges, so do we. Usually on a similar plane too.

Distractions

Signals =
come here
yes

however we signal each other to be present and realize when we are being Distracted
its funny that you got me to realize how distracted I have been from posting on the blog. Well done Sir!

Its awesome! We get to play such a fun game of life. I couldnt have asked for a better companion.  Again I dont know where this is going, but it shall continue( on a more regular basis ). HAHA!
Brosev

rupture1

 
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applause

Posted by rae on Jun 3, 2009 in Mom's Corner

I love the new theme! It just keeps getting better!! Mike is working with Jim on the blog each week trying to make it a little easier to navigate and a little more user friendly. Mike said that he would like this site to read more like a book so for those landing on the site for the first time, if there was interest for a better understanding they would have a way to begin at Chapter One. 

October 22, 2007  ” Michael was in a single car accident on I66 at exit 66 at 3:20 AM October 21, 2007….

Tuesday, October 23 – One foot in front of the other, breathe in, breathe out. I realized today, I am not the one to give updates. Getting through the days with overwhelming love and support from friends and family. I can’t begin to describe the emotional roller coaster. I cannot find the right words to describe that moment when a mother is confronted with her child’s mortality and she is helpless to make it better….

Chapter 2 might begin with:

11-1-07 @9:00/AM – Today is a GREAT day. Mike responded to some commands, they asked him to show them his thumb and two fingers and he did. He also tried to open one eye.

Yesterday morning as Mike and I were in the cool down portion of our two miles, we passed a neighbor and she said “I see you both walking in the mornings, I’ve been watching you over this year and I just wanted to tell you what a good Mom I think you are. You are so committed.” I thanked her of course but that kind of talk makes me really uncomfortable. It’s not anything different than any parent would do. If you were in the same situation, you would do everything in your power to try to get back the life your child once had. We all want our children to achieve their potential. This isn’t much different than sitting with them through difficult homework, or insisting they practice violin, or memorize multiplication tables. Not so different unless you face the reality of the brain injury every day. That’s what you can’t do. That’s what I can’t do and that’s what I don’t do. For me, it is still breathe in, breathe out. One foot in front of the other. 

Much like Michael’s rehab, this blog will be a work in progress and it, just like Mike might just serve as inspiration and could offer so much more for us all. I know I’m not alone when I find myself asking and wanting more than I should. Insatiable? Ungrateful? I don’t know, but when paired with images of what it could have been, the initial prognosis, the injuries sustained, where we’ve come from and the progress thus far, I have to question my sanity. 

Huge applause to the effort Mike puts in to each day. HUGE applause. This is NOT EASY! I do push him but he puts in the work and he pushes himself to stay focused. He pushes himself not to get lost in the tangled thoughts, habits and behaviors that the, as he calls it “stupid brain injury” creates and causes. When the brain is making new pathways and connections, it doesn’t always get it right.

Michael, I applaud your hard work and I am so proud of you.

I also applaud everyone who contributes to Mike’s continued recovery. Nathan, Sylvette, Emily and Bobby – you guys are in the daily trenches. Big applause! Karl, Jim, and Matt - you know why – BIG applause.  To everyone else that reaches out and understands why Mike doesn’t – Big applause.   

 

 

 

 

Mike will be twenty seven years old on June 18th. I thank God for all his blessings.
LIVESTRONG Michael

xxoo

 

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